Advocacy groups
Find your advocacy group
Type a gene name such as SCN2A, or choose from the list, to find the patient advocacy groups (PAGs) that support your family — in Australia and around the world.
30 genes & conditions · 40 groups
Choose a gene or condition to see the groups that can help.
No diagnosis yet?
Don’t know your gene?
Many families wait years for a genetic diagnosis. The DEE Natural History Study welcomes anyone with a DEE, and we’re happy to help you find the right people to talk to.