Genetic Epilepsy Team AustraliaGenetic Epilepsy Team Australia

For the community

Our diagnoses are rare. Our community is not.

GETA was founded by parents of children with rare genetic epilepsies. We know how it feels to search for answers. Here is where to find the people, events and research that can help.

01Find your groupPatient advocacy groupsMany genes have a dedicated group that offers information, community and research updates. Search by your child’s gene or condition to find yours.Search advocacy groups
02Meet other familiesGenetic Epilepsy Family ConferenceEvery year GETA brings families together with world-leading researchers and clinicians, in person and by livestream. Recordings of past talks are free to watch.See the conference
03Take partResearch studiesStudies currently recruiting people with developmental and epileptic encephalopathies (DEEs) and their families, with contact details for each team.See current studies
04Stay connectedThe GETA communityFollow along for event news, research milestones and stories from families across Australia.Find us on Facebook

You’re part of the team

Questions? We’re parents too.

If you can’t find what you need, send us a message. We’ll point you to the right group, researcher or clinician wherever we can.

Contact GETA