Conference 2017 · Melbourne

Genetic Epilepsy Team Australia’s 2017 Family Conference on Genetic Epilepsy

Over 100 attendees were informed, inspired and connected with other families affected by rare genetic epilepsy at the 2017 Family Conference. The latest research on genetic epilepsy and future treatments was discussed by world-leading medical and scientific experts including Prof Ingrid Scheffer and Prof Steven Petrou.

Program

Saturday 27 May 2017 · Melbourne

  1. 9.15 - 10.00
    The Alphabet Soup of Genetic EpilepsiesProf. Ingrid Scheffer AO FAHMS FAA
  2. 10.00 - 10.30
    Pathway to Precision TherapyProf. Steve Petrou
  3. 10.30 - 10.45
    Q & A with Professors Scheffer and Petrou.
  4. 10.45 - 11.15Morning tea
  5. 11.15 - 11.30
    Entertainment
  6. 11.30 - 12.30
    Panel 1 - Communication and Behaviour StrategiesPanellists include a Speech Therapist, Behavioural Psychologist and Paediatrician
  7. 12.30 - 1.00
    Break out sessions with panellists. Choose one panellist to spend more time with.Panelists run break out sessions on their speciality
  8. 1.00 - 1.45Lunch
  9. 1.45 - 2.00
  10. 2.00 - 2.45
    Funding – decoding the NDIS and successfully advocating for your childrenLaura Green
  11. 2.45 - 3.30
    Panel 2 - Expand your horizonsLearn about alternative therapies to engage your child while taking care of yourself. Panellists include an RDA representative, OT, specialised drama and dance teachers, Clinical Psychologist.
  12. 3.30 - 4.15
    Becoming Chief, how to lead your special needs tribeCathy LoveListen to the recording
  13. 4.15 - 4.30
    Talk about their journeys from pre-diagnosis through to connection to the communityGETA parents
  14. 4.30 – 5:00Afternoon Tea