Conference 2017 · Melbourne
Over 100 attendees were informed, inspired and connected with other families affected by rare genetic epilepsy at the 2017 Family Conference. The latest research on genetic epilepsy and future treatments was discussed by world-leading medical and scientific experts including Prof Ingrid Scheffer and Prof Steven Petrou.
Children with genetic epilepsy often have developmental problems, and with that can come challenges with communication and behaviour. This panel discussion features a psychologist (Sue Hymus), paediatrician (Dr Tristan Pawsey) and speech therapist (Stacy Cohen).
Mindfulness can be a helpful way for parents and carers to manage stress and energy levels. This mindfulness meditation exercise runs for 15 minutes and focusses on sitting with the breath. If you’re interested in learning more about mindfulness check out A Mindful Way (https://amindfulway.com.au).
Talk details →It can be hard to navigate the multiple systems of disability support and funding. As funding transitions to the National Disability Insurance Scheme (NDIS) it’s important to stay clear on what will best suit your family.
Talk details →In addition to speech, physiotherapy, what other things can be helpful for children with genetic epilepsy? A panel consisting of dance and drama teachers, a psychologist, riding trainer and occupational therapist talk about options.
Cathy Love, occupational therapist, author and coach talks about becoming the leader of your special needs team.
Talk details →