Conference 2026 · Brisbane

Genetic Epilepsy Team Australia’s 2026 Genetic Epilepsy Conference

Hear the latest on genetic epilepsy from world-leading experts at the Genetic Epilepsy Family Conference, May 2nd 2026.

Program

Saturday 2 May 2026 · Queensland Children’s Hospital, Brisbane

  1. 8:30am – 9:00amRegistration, tea and coffee
  2. 9:00am – 9:15am
    Welcome and IntroductionSara James (VIC)
  3. 9:15am – 10:00am
    Genetic Epilepsies in 2026Prof Annapurna Poduri (US)
  4. 10:00am – 10:10am
    Five minutes with – SCN1A parentJohn Mancini (QLD)
  5. 10:10am – 10:50am
    What can you do for the DEE community, and what the DEE community can do for you.Prof Ingrid Scheffer (VIC)
  6. 10:50am – 10:55am
    The DEER StudyAmy Schneider
  7. 10:55am – 11:25amMORNING TEA – sponsored by Jazz Pharmaceuticals
  8. 11:25am – 11:55am
    Spider Venom Peptides: Precision Therapy for Genetic EpilepsiesA Prof Lata Vadlamudi (QLD)
  9. 11:55am – 12:25pm
    Bringing Precision Medicines to MarketDr Yuri Maricich (US)
  10. 12:25pm – 12:35pm
    Five minutes with – KCNQ2 parent and siblingDr Jennie Nowers and Ashton (QLD)
  11. 12:35pm – 12:40pm
    The SIBS-ONLINE projectMaddison Smith (NSW)
  12. 12:40pm – 12:45pm
    Submissions for the Senate InquiryDanielle Williams (VIC)
  13. 12:45pm – 1:30pmLUNCH – sponsored by UCB
  14. 1:30pm – 1:45pm
    Predictors of Quality of Life in DEEsProf Jenny Downs (WA)
  15. 1:45pm – 1:55pm
    Five minutes with – SCN2A parentDr David Cunnington (QLD)
  16. 1:55pm – 2:40pm
    Sleep in DEEs and their carersA Prof Jasneek Chawla and A Prof Honey Heussler (QLD)
  17. 2:40pm – 3:25pm
    Pathways to Access: Where Families and Clinicians Make the DifferenceAnn Single and Kris Pierce (QLD)
  18. 3:25pm – 3:55pmAFTERNOON TEA & Activity – sponsored by Praxis
  19. 3:55pm – 4:00pm
    Five minutes with – SCN1A ParentMelissa Garcia (QLD)
  20. 4:00pm – 4:45pm
    Panel
  21. 4:45pm – 5:00pm
    Summary and CloseSara James
  22. From 6:00pmDINNER – The Ship Inn (separate registration required) – sponsored by Lundbeck