Conference 2026 · Brisbane
Genetic Epilepsy Team Australia’s 2026 Genetic Epilepsy Conference
Hear the latest on genetic epilepsy from world-leading experts at the Genetic Epilepsy Family Conference, May 2nd 2026.
Program
Saturday 2 May 2026 · Queensland Children’s Hospital, Brisbane
- 8:30am – 9:00amRegistration, tea and coffee
- 9:00am – 9:15amWelcome and IntroductionSara James (VIC)
- 9:15am – 10:00amGenetic Epilepsies in 2026Prof Annapurna Poduri (US)
- 10:00am – 10:10amFive minutes with – SCN1A parentJohn Mancini (QLD)
- 10:10am – 10:50amWhat can you do for the DEE community, and what the DEE community can do for you.Prof Ingrid Scheffer (VIC)
- 10:50am – 10:55amThe DEER StudyAmy Schneider
- 10:55am – 11:25amMORNING TEA – sponsored by Jazz Pharmaceuticals
- 11:25am – 11:55amSpider Venom Peptides: Precision Therapy for Genetic EpilepsiesA Prof Lata Vadlamudi (QLD)
- 11:55am – 12:25pmBringing Precision Medicines to MarketDr Yuri Maricich (US)
- 12:25pm – 12:35pmFive minutes with – KCNQ2 parent and siblingDr Jennie Nowers and Ashton (QLD)
- 12:35pm – 12:40pmThe SIBS-ONLINE projectMaddison Smith (NSW)
- 12:40pm – 12:45pmSubmissions for the Senate InquiryDanielle Williams (VIC)
- 12:45pm – 1:30pmLUNCH – sponsored by UCB
- 1:30pm – 1:45pmPredictors of Quality of Life in DEEsProf Jenny Downs (WA)
- 1:45pm – 1:55pmFive minutes with – SCN2A parentDr David Cunnington (QLD)
- 1:55pm – 2:40pmSleep in DEEs and their carersA Prof Jasneek Chawla and A Prof Honey Heussler (QLD)
- 2:40pm – 3:25pmPathways to Access: Where Families and Clinicians Make the DifferenceAnn Single and Kris Pierce (QLD)
- 3:25pm – 3:55pmAFTERNOON TEA & Activity – sponsored by Praxis
- 3:55pm – 4:00pmFive minutes with – SCN1A ParentMelissa Garcia (QLD)
- 4:00pm – 4:45pmPanel
- 4:45pm – 5:00pmSummary and CloseSara James
- From 6:00pmDINNER – The Ship Inn (separate registration required) – sponsored by Lundbeck
