Conference 2025 · Parkville

Genetic Epilepsy Team Australia’s 2025 Genetic Epilepsy Conference

Join us for our 2025 meeting on Saturday 3rd May. Participating in the conference is a great opportunity for families, researchers and clinicians to hear the latest research in genetic epilepsy and developmental and epileptic encephalopathies (DEEs).

Program

Saturday 3 May 2025 · The Florey Institute of Neuroscience and Mental Health, Parkville

  1. 08:30am – 09:00amRegistration and morning tea
  2. 09:00am – 09:15am
    Welcome and IntroductionSara James
  3. 09:15am – 10:15am
    An update on new treatments and clinical trials for genetic therapiesProf Andreas BrunklausWatch the recording
  4. 10:15am – 10:25am
  5. 10:25am – 11:10am
    International collaboration is keyProf Ingrid SchefferWatch the recording
  6. 11:10am – 11:40amMorning tea
  7. 11:40am – 11:50am
  8. 11:50am – 12:35pm
    Single-participant trials for novel epilepsy treatmentsProf Piero PeruccaWatch the recording
  9. 12:35pm – 12:55pm
    Developing RNA-based therapies for DEEs and an ASO to increase gene expression in SYNGAPDr Yuri Maricich (Camp4)Watch the recording
  10. 12:55pm – 1:15pm
    MICE-DEE: a novel behavioural and psychological intervention for families living with DEEDr Genevieve Rayner / Eliza HonybunWatch the recording
  11. 1:15pm – 2:00pmLunch
  12. 2:00pm – 2:45pm
    Models of care for the rare DEEs. Learnings and new resources from our research and the global communityDr Emma PalmerWatch the recording
  13. 2:45pm – 2:55pm
  14. 2:55pm – 3:25pm
    Getting a new medication to patients: Not a piece of cake!Prof Ingrid SchefferWatch the recording
  15. 3:25pm – 3:55pmAfternoon tea
  16. 3:55pm – 4:00pm
    Carer Gateway is an Australian Government initiative that provides free services and support to carersAmanda Southwell (Carer Gateway / Holstep Health)
  17. 4:00pm – 4:45pm
    Panel
  18. 4:45pm – 5:00pm
    Summary and CloseSara James